NCT02775461
Pancreas Registry and High Risk Registry
Recruiting · Not specified · Icahn School of Medicine at Mount Sinai · registry updated 2026-02-11
Inclusion and exclusion lines below are quoted from ClinicalTrials.gov. No match score is shown, because a score needs a person's age, biomarkers, and treatment dates. Confirm the record with the study team.
The purpose of this study is to establish a registry of patients with pancreatic diseases. Patients included in the registry may include those with: pancreatic cancer, precancerous lesions of the pancreas, inflammatory lesions of the pancreas, cystic lesions of the pancreas, and patients at high-risk of pancreatic cancer such as those with a family history of pancreatic cancer or with a family history of a syndrome known to be associated with pancreatic cancer. Pancreatic cancer is the fourth leading cause of death from cancer in the United States. However, little is known about the development of pancreatic cancer and pancreatic diseases in individuals with the above conditions. Knowledge of how family history, environmental exposures, and inflammatory lesion of the pancreas contribute to the development of pancreatic cancer and pancreatic diseases is essential. You may qualify to take part in this research study because you have inflammation in the pancreas, a pancreatic cyst, pre-cancerous lesions of the pancreas, pancreatic cancer, a family history of pancreatic cancer, or a family history of a syndrome known to be associated with pancreatic cancer....
Inclusion
- At least 1 first degree relative affected with Pancreatic Cancer
- Any of (BRCA1, BRCA2, PALB2, ATM) mutations + 1 family member with Pancreatic Cancer
- mFAMMM (p16,CDKN2A mutations) + 1 family member with Pancreatic cancer
- Known mutation carrier for STK11 (Peutz Jeghers Syndrome)
- Lynch syndrome (HNPCC) + 1 family PDAC
- Known mutation carrier for Hereditary pancreatitis
Exclusion
- Patients who do not speak English or Spanish
- Refusal by patient
- Individuals under the age of 18 years